Waiting for a heart or lung transplant: Relatives' experience of information and support.
نویسندگان
چکیده
OBJECTIVES To describe the relatives' experiences of information and support while heart or lung transplant candidates were waiting for a transplantation. METHODOLOGY/DESIGN The critical incident technique was used. Incidents were collected via interviews with 18 relatives (28-73 years old) of heart or lung transplant patients within four weeks of the patients being accepted onto the transplant waiting list. FINDINGS A total of 286 important events, both positive and negative, were identified and divided into two main areas: "Experiencing information and support" and "Reflecting upon information and support." "Experiencing information and support" was associated with "dissatisfaction with the health-care system", "being relatively satisfied", "supporting patients" and "the role of social networks." "Reflecting upon information and support" was associated with "finding strength" and "uncomfortable with emotions". Relatives experiences suggest that needs can be met through specific targeted information and support for them as well as mediating contact to previously transplanted persons. CONCLUSION The findings indicate a gap between the information and support that relatives need and receive, and that more attention should be paid to information and support for this group. By increasing awareness among healthcare professionals and the community, interventions can be developed that benefit relatives.
منابع مشابه
WAITING FOR A HEART OR LUNG TRANSPLANT: RELATIVES’ EXPERIENCE OF INFORMATION AND SUPPORT Short title: Relatives’ experience of support before a heart or lung transplant
متن کامل
تعیین شدت و الگوی سوء مصرف مواد در بیماران کاندید پیوند ریه و قلب مراجعه کننده به بیمارستان دکتر مسیح دانشوری
Abstract Background: Consumption of substance, alcohol and cigarettes in candidates for transplant surgery is a major problem as these habits can decrease the rate of success in transplant surgery. Since Masih Daneshvari Hospital is a center for heart and lung transplant this study was done to gather information about the prevalence of cigar and substance use among patients on the waiting li...
متن کاملRelative's experiences before and after a heart or lung transplantation.
BACKGROUND Relatives take on great responsibilities during patients' heart or lung transplant process and an understanding for their situation is required. OBJECTIVE To describe relative's experiences before and during the patient's hospital stay as well as during the first 6 months after a heart or lung transplantation. METHODS Using qualitative content analysis, 15 relatives (eight women ...
متن کاملA consensus document for the selection of lung transplant candidates: 2014--an update from the Pulmonary Transplantation Council of the International Society for Heart and Lung Transplantation.
The appropriate selection of lung transplant recipients is an important determinant of outcomes. This consensus document is an update of the recipient selection guidelines published in 2006. The Pulmonary Council of the International Society for Heart and Lung Transplantation (ISHLT) organized a Writing Committee of international experts to provide consensus opinion regarding the appropriate ti...
متن کاملExperiences of supportive care when waiting for a lung re-transplantation
OBJECTIVES Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs. METHODS Using qualitative content analysis, s...
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عنوان ژورنال:
- Intensive & critical care nursing
دوره 30 4 شماره
صفحات -
تاریخ انتشار 2014